Sorry guys that I have not posted in a few days. I try to keep up as best I can but some days life just gets in the way. I know I am not the only person in the world with health problems but sometimes I wish I could just take the magic pill that makes all the health problems go away. Okay not very realistic but you have to admit it would be pretty nice to take one pill that solved whatever problem or issue you were dealing with at the time. Unfortunately sometimes things get the best of me. What things? Things like fibromyalgia, migraines and crap like that. When I was younger I had killer periods and major pain. Once I got married I found I could not get pregnant no matter what I did. My hubby and I decided that sex did not work. Ha. Well anyway come to find out I had fibroids and lots of endometriosis. At least that explained some of the problem. Welcome miracle drug Clomid and voila kiddos. Not quite that easy and actually it took a while but it is amazing to me that we have three kids. Lets just say hubby and I are beyond thankful to God for our wonderful boys. I mean we actually thought our only choice would be to adopt. Now don't get me wrong, adoption is a great thing and we were more than willing to follow that route. Our only concern was finances because adoption can be expensive.
So we have the kiddos and I keep getting these nasty cysts on my ovaries that cause intense pain that just won't stop. And, my doctor says you should try this medication, Lupron, that has NO side effects. FYI: If you hear no side effects run and do a google search and see what you find. Of course this was 2001 and you did not really google anything then. So I do this 6 month trial of lupron and guess what? The pain I had before was nothing to the new symptoms I began experiencing. I started getting worse and worse headaches that eventually turned into migraines. I started having severe bone pain in my lower legs and more and more strange things started happening. Of course my doctor said that Lupron is safe and there are no side effects like I am describing. So I go to my primary doctor and he does lots of tests and they can't figure out what is wrong with me. A few doctors more and they start saying fibromyalgia. I had never even heard of fibromyalgia and I did not want to have it. It did not sound good so I kept telling them no I don't have that and I am sure I will get better. But as luck would have it, that never happened.
So as time goes on it is harder and harder to work. I cut down my hours, I work in the middle of the night when my migraine finally goes away, I try anything but ultimately I cave. I mean I am human and I just can't do it anymore. Everything hurts and nobody even believes me. As far as they can tell, I look just fine. I just want to scream but it would not do any good anyway. Well that is the kind of day I have had the last few days. So if I disappear off the face of the earth every once in a while, now you know why.
Anyway, Lupron, that medication I took? Now there are additional side effects listed on the medication label. One of the side effects is fibromyalgia like symptoms and bone pain, go figure. And, it causes bone loss, which then gives you osteoporosis and may be part of the reason for the bone pain. And the permanent side effects go on and on. Come to find out Lupron is a chemotherapy drug used to treat prostate cancer in men. And now men are having all kinds of bone pain and osteoporosis. Surprise surprise. So if you are offered Lupron, my thought would be to run the other way or at least read this article first. Just my opinion. Hope to have some great deals for you real soon. Feel free to leave a response if you are dealing with lifes issues as well. I would love to hear from you.
2 comments on "Endometriosis, Fibromyalgia, migraines, lupron and life............"
I wish your experiences with the medical world were unique, but they're not. I, too, have fibromyalgia and when I used to take many prescribed meds for it, my symptoms were amplified. As I got off the meds, my symptoms decreased. Today they are very manageable and I live a normally functioning life. It's an individual journey and each much find his or her own path. Kudos to you for seeking your own education!
Sue Ingebretson
www.RebuildingWellness.com
I also have endometriosis, migraines and now fibromyalgia. I started having issues at 16 and every year since, just when I thought I couldn't take any more, some new awful pain would emerge. I also have to deal with people in total disbelief that I am in so much pain, despite all the surgeries, miscarriages and having to go through years of infertility treatments to have my daughter. Since my hair has started falling out so badly, I suppose the only "good" thing is that they can see that "something" isn't quite right. :-( I just want you to know that there are so many of us out here that know your pain. I don't usually read blogs, but I saw this while searching for my own "medical advice", despite the fact that even as a former researcher I, too, get completely mistreated, misdiagnosed, etc. from doctors who actually should know I actually know when they don't know what they are saying. I get so tired of battling with ego driven doctors who don't want to help you if it means seeing that they don't know something. I have always said that if any of these conditions were actually major health issues suffered by men, research funds would be overflowing to cure it. I wish you peace and hope, because I need to believe that we all deserve a break from the hell we've been given to deal with. Regards, J
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